It’s Thursday and for the last three days Zoe has been up at Camp Korey, a place I am convinced is just about the greatest and most gracious gift our family has been blessed with. I was nervous to take her for such a long overnight camp. I wondered if she would drink enough water (yes this is a big deal). I wondered if the blistered patch of sunburn on her cheek would get worse. I wondered how she would cope with stomach issues and if her Wednesday only medication would be administered everyday or not at all. Thank goodness for my dear friend Janis who texted me the night before to let me know that I’m not alone in being anxious this first year. To be more precise she said that when she dropped off her son the first year her first thought was, “What have I done?”
It took exactly five minutes for me to shed my worry when we arrived. One of the first things a counselor said to her was, “Nice water bottle. We have a new one for you that you will carry around this week. We’re going to be drinking a lot of water this week.” Then when I met her cabin counselor and pointed out her blistered spot she explained that they apply sunscreen every 2-3 hours and everytime they’ve been in the water. DONE. In that moment I realized that they were going to take better care of her than I do. What parent actually reapplies sunscreen every 2-3 hours?
For once all of Zoe’s special and extra needs were everyone’s. Every kid there is on an immunosuppressant. The camp is tailored for them so every reservation I had was already accounted for. I can’t wait to see how it feels for her to be with her peer group; a week without feeling different. Realizing every kid there knows what it is like to stay days and days in the hospital, to know there is always another surgery to come, to be tied to medications and doctor’s appointments when all your friends are at the park.
It was a breath of fresh air for me to stand in rooms of parents who live the same type of life I do and not feel “other”. Every parent there was both a little nervous and also extremely grateful to leave and have a week without. A week without medications, without doctor’s appointments, without hand gel, without stethoscopes, without being part mom/dad and part nurse. A week without the transplant life. A sabbath.