Summer
It’s been a long summer in many ways seeing Zoe continue to have nausea everyday. Almost three weeks ago now we switched her back to Tacrolimus to see if, indeed, the Cyclosporine was the cause of her nausea. Everything was so convoluted because she had her colon back up in the midst of everything else but all her specialists finally agreed that it wasn’t the primary cause of her nausea so before “looking for zebras” as they call it and doing some completely unbelievably invasive stuff to her they decided to try her back on the Tacrolimus. Eleven days into the medication change something shifted in her. It was like a light coming back on. A couple more days and it was evident that Zoe was back. At one point this last weekend Paul said, “I had forgotten what she was really like”. On Saturday, for the first time in 81 days she had no nausea! The most striking thing is that at the same time a new medication was causing her to have a tender, distended belly and mild constipation. If you can run around with your belly over 2 inches larger, firm and tender and say you’re feeling great then it must have been pretty bad before.
Although she is still having nausea at least once a day, it is milder and short lived and is more consistent with her colon issue from earlier in the summer. I’m hopeful her body is on the mend but it has all taken a toll. She has suffered from full body hives in the last month plus and required almost 2 weeks of steroid treatment to get them under control and her magnesium level in her body dropped enough to give her eye tics.
It will still be up and down for awhile but things are finally looking up. Kindergarten starts in two weeks and a certain someone can hardly wait.
